Our Impact

ROY

Roy is 10 years old and was diagnosed with sickle cell disease at birth. He was referred to the Children's Cancer Institute at the Joseph M. Sanzari Children's Hospital at Hackensack University Medical Center for a matched sibling donor stem cell transplant in order to cure him of his disease. Roy was admitted in May and received his bone marrow transplant a few weeks later. Following his transplant, he experienced severe post-transplant complications and was admitted to the pediatric intensive care unit with severe respiratory failure. Roy also required surgery to his small intestine to alleviate bleeding, and his condition remained critical for several weeks. He was recently transferred to the bone marrow transplant unit as his condition slowly improved, and he is expected to continue to improve and be discharged home within a few weeks. Roy resides with his parents and two siblings, ages 2 and 7. Roy’s mother is currently in nursing school and Roy’s father took a leave of absence from his job to be present with him in the hospital. Due to the loss of income from Roy’s father’s leave of absence, the family experienced financial stress. The assistance provided by The Jillian Fund helped to alleviate this stress and allowed Roy’s parents to focus on their son during his difficult recovery.