Our Impact

BOBBY

Bobby, a 16 year old young man, was diagnosed with sickle cell anemia at birth. Throughout his life he has endured frequent and often long hospital stays for sickle cell crises, viral infections and various related conditions including seizures, brain lesions and EBV lymphoma. At age 5, Bobby suffered a stroke, and within an eleven month period in 2011 and 2012 he underwent two bone marrow transplants. The support provided by the Jillian Fund alleviated the sometimes severe financial stress the family suffered due to the unpaid leaves of absence Bobby’s parents took to be with their son. The support allowed his parents to be present at his bedside, comforting Bobby and maintaining hope that he will one day be well. This hope was not in vain. Today Bobby, although still in a wheelchair, attends school part-time, his outpatient visits have become less frequent and his medication requirements continue to decrease. He is on a road to recovery.